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12 Days of NYA
Check out our social media pages to learn more about the impact of your support during the 12 Days of NYA!
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HD SYMPTOMS AND TREATMENT IMPACT SURVEY
This first-of-its survey has been created by the HD community for the HD community. When you take this survey, you will be informing the FDA, NIH and medical product developers how you describe the challenges of living with HD, manage symptoms, and define the value of new treatments.
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TAKE ACTION NOW!
You can participate in the HDSA Externally-led Patient Focused Drug Development (EL-PFDD) Meeting for Pre-symptomatic and Early to Mid-Stage Adult Onset of HD, on November 13, 2024.
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JOIN POWER HD
By generating the most comprehensive patient-driven Huntington's disease data we can accelerate research and the development of new drugs, devices, or other therapies. YOU HAVE THE POWER.
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SAVE THE DATE!
Join us for the 40th Annual HDSA Convention in Indianapolis, Indiana on June 26-28, 2025
This is your unique chance to connect, learn, inspire and get inspired. Our convention is not just an event - it's a celebration, it's magic! -
NEW Support Groups
We have added 4 new support groups specific to young adults. Click the link below to find out more information and sign up!
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Ask A Youth Social Worker
Have a question for a youth social worker? Need help? Give us a little information about what's going on, and one of HDSA's Youth Social Workers will reach out to help!
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Mentorship Program
HDSA's National Youth Alliance has partnered with the Huntington Society of Canada and HDYO to launch a mentorship program for youth & young adults impacted by HD