ChairMiranda has been a member of the HDSA, and a member of the National Youth Alliance since attending the 2015 Dallas Convention. She graduated from Michigan State University in 2016 with a Bachelors in Nursing and currently works as an RN at Henry Ford Detroit in the Operating Room. Miranda has been on the NYA Board for four years originally as the Research Chair, and now as of 2020, she now serves as the NYA Chair. Miranda has had the opportunity to speak at multiple education days, national convention, has spoken to senators to advocate for the HD Parity Act, and has run the New York City and Chicago Marathon’s in support of HD. Her grandma and her grandma's sister and brother, along with her aunt are gene-positive for HD and has many family members that are still at risk for HD.
In 2019, Ashley became the Fundraising Chair. She has been called driven and passionate for the cause. Her mother was diganosed with Huntington's disease and Ashley tested positive as well. She wants to continue providing outreach for the NYA as she wants this to be there for her daughter when she gets older.
Jessica has been a member of the NYA since 2018. In 2020, she became the Advocacy & Communications Chair. She graduated from Auburn University with a degree in mechanical engineering and works for a local firm designing hospitals for the VA. Jessica has served as a NYA regional lead for the past two years. She currently sits on the Oklahoma Chapter board and leads a support group for the Oklahoma City area. Jessica has advocated with congress representatives about the HD Party Act, helped plan local fundraisers for HDSA, and hosted a Team Hope Walk on Auburn’s campus. In 2019, Jessica and her family won the NYA’s Advocacy Award at the Boston Convention. Her niece Autumn has juvenile HD and her nephew Logan is at risk.
Advocacy & Communications Chair
Katie joined the NYA Board in 2020 and is on HDSA's Minnesota Chapter Board. Katie is passionate to provide more resources to the younger generation as she did not have many resources when she was growing up.