ChairMiranda has been a member of the HDSA, and a member of the National Youth Alliance since attending the 2015 Dallas Convention. She graduated from Michigan State University in 2016 with a Bachelors in Nursing and currently works as an RN at Henry Ford Detroit in the Operating Room. Miranda has been on the NYA Board for four years originally as the Research Chair, and now as of 2019, she now serves as the NYA Chair. Miranda has had the opportunity to speak at multiple education days, national convention, has spoken to senators to advocate for the HD Parity Act, and has run the New York City and Chicago Marathon’s in support of HD. Her grandma and her grandma's sister and brother, along with her aunt are gene-positive for HD and has many family members that are still at risk for HD.
In 2019, Ashley became the Fundraising Chair. She has been called driven and passionate for the cause. Her mother was diganosed with Huntington's disease and Ashley tested positive as well. She wants to continue providing outreach for the NYA as she wants this to be there for her daughter when she gets older. “I accept my HD. The NYA has helped me with the support and they have become family to me. The feelings that you are feeling are okay. The NYA knows how you feel. We are a big family and take the leap with us.”
In 2020, Jessica became the Advocacy & Communications Chair. Jessica is also the Regional Lead for Oklahoma and is a member of HDSA's Oklahoma Chapter Board. She has a family member with Huntington's disease and made her want to get more involved. “Find your HD Ohana (family) and lean on them. The world of HD can feel very isolating, but you are not alone. We have the benefit of living in a world where you can connect with others with a simple click of a mouse or the swipe of your finger.”
Advocacy & Communications Chair
Katie joined the NYA Board in 2020 and is on HDSA's Minnesota Chapter Board. Katie is passionate to provide more resources to the younger generation as she did not have many resources when she was growing up. “The NYA has been a life changing community for me. I have met some of my best friends and biggest support systems by attending retreats." She is at risk for Huntington's disease. Her father is diagnosed with the disease and her grandmother passed away due to complications