Connect with us:

Donate

About The NYA
#LetsTalkAboutHD Stories
Programs
Resources
Get Involved

REGISTER TODAY!

Join us June 1-3, 2023 in New Orleans, Louisiana for the 38th Annual HDSA Convention! Register today to be a part of the magic of the HDSA Convention at the beautiful Sheraton New Orleans.

Learn More
2023 NYA RETREATS

Attend HDSA NYA Retreats to learn, bond and meet other young people who are affected by Huntington’s disease!

Learn More
Ask A Youth Social Worker

Have a question for a youth social worker? Need help? Give us a little information about what's going on, and one of HDSA's Youth Social Workers will reach out to help!

Learn More
NYA RETREATS ARE BACK!!

Incredible opportunities to learn, bond, and meet other young people who are affected by Huntington’s disease. Thanks to a generous educational grant from Teva Pharmaceuticals, there is no registration cost or attendance fee.

Learn More
NYA VIRTUAL MINI SERIES

We're taking important topics and conversations and hosting hour-long sessions about them every other Saturday. Join us for as many discussions as you need, we look forward to seeing you!

Learn More
Mentorship Program

HDSA's National Youth Alliance has partnered with the Huntington Society of Canada and HDYO to launch a mentorship program for youth & young adults impacted by HD

Learn More

Community
Social Support

YOUTH SERVICES

When children are not sure what’s happening to their family because of HD, and not given answers to what they see or an avenue to discuss it, they may create erroneous explanations on their own. Learn how to talk to your kids about HD. >

CAREGIVER SERVICES & RESOURCES

Caregiving is an act of courage, love and sacrifice. As a caregiver, you have chosen to put the wellbeing of a loved one with HD on an equal footing (or even above) your own needs. Learn how to cope with the responsiblity of taking care of your loved one - and yourself! >

Locate
Resources

Join the NYA

Learn more

NEWS

2023-01-06

#LetsTalkAboutHD with Jack Cooper
2022-12-22

#LetsTalkAboutHD with Amy-Jo Adams
2022-11-17

#LetsTalkAboutHD with Mande Bellman
2022-10-29

CBS17 live at the 2022 North Carolina Team Hope Walk
2022-10-13

#LetsTalkAboutHD with Dani Stevens
2022-09-29

#LetsTalkAboutHD with Caitlan Jane O’Heeron
2022-09-01

#LetsTalkAboutHD with Chelsea Lee
2022-08-18

#LetsTalkAboutHD with Kaylie Meacham
2022-07-14

#LetsTalkAboutHD with Jenna Mannone
2022-05-19

#LetsTalkAboutHD with Zoe Saridakis
2022-04-28

#LetsTalkAboutHD with Sarah Marier
2022-04-07

#LetsTalkAboutHD with Mark Adler
2022-03-10

#LetsTalkAboutHD with Kristen Shaughnessy
2022-02-10

#LetsTalkAboutHD with Kyra Clarke
2022-01-20

#LetsTalkAboutHD with Brian Smith
2021-12-24

CBS Pittsburgh Interview with HDSA's National Youth Alliance
2021-12-16

#LetsTalkAboutHD with Dougan Smith
2021-12-14

#LetsTalkAboutHD with Lauren Rogers
2021-12-01

#LetsTalkAboutHD with Bailey Fairchild
2021-11-23

#LetsTalkAboutHD with Nick Cassino
2021-10-08

#LetsTalkAboutHD with "Sarah"
2021-08-26

#LetsTalkAboutHD with Kellie Spinner
2021-06-13

Jenna and Gia Mannone win HDSA Youth Award
2021-05-24

ABC WDAY News: Grafton native becomes advocate after losing her father to HD
2021-05-19

The Phil Parker Show interview NYA Member Megan Osowski
2021-05-14

KX CBS News interviews NYA member Megan Osowski
2021-04-08

#LetsTalkAboutHD with Janelle Roybal
2021-04-08

Nassau Community College interviews Gia Mannone
2021-04-02

R Is Rare Podcast with Ashley Pesi
2021-03-11

#LetsTalkAboutHD with Dr. Kelsey Stuttgen Finn
2021-02-18

#LetsTalkAboutHD with Tanja Ward
2020-12-22

Action News Now: JHD Not Stopping Redding Teen From Living Life
2020-12-08

WPR: Gene Modification Treatments Could Delay Onset Of HD
2020-11-19

#LetsTalkAboutHD with Holly Matthews
2020-11-12

#LetsTalkAboutHD with Kelly Strong
2020-10-01

Fox 17 interviews NYA Member Shelby Lentz about Virtual Team Hope Walk
2020-09-27

News 9 interviews NYA Member Jessica Fitzpatrick
2020-08-27

#LetsTalkAboutHD with MaKenzie Cordell
2020-08-25

Here's the Deal with Talking to Kids About Huntington's Disease
2020-08-17

First Coast News shares Shelby Williams' HD Story
2020-08-13

News4Jax interviews Shelby Williams
2020-08-06

#LetsTalkAboutHD with Shelby Williams
2020-07-22

Here's The Deal with End of Life & Huntington's Disease
2020-05-22

#LetsTalkAboutHD with Collin Harrington
2020-05-14

#LetsTalkAboutHD with Draque Ricco
2020-04-02

#LetsTalkAboutHD with Madalynn Minica
2020-01-14

#LetsTalkAboutHD with Kirsten Sandmire
2019-12-28

Spectrum News One interview with NYA's Anna Lunsford
2019-12-17

#LetsTalkAboutHD with Kiersten Wood
2019-12-13

FOX 28: NYA Members share their HD Story
2019-12-13

#LetsTalkAboutHD with Alorah Beers
2019-12-06

#LetsTalkAboutHD with Rebecca Eastwood
2019-12-04

#LetsTalkAboutHD with Raegan Heitzenrater
2019-11-22

#LetsTalkAboutHD with Sarah Miller
2019-11-13

#LetsTalkAboutHD with Destiny Hand
2019-11-07

Fox 11 News: Student becomes self-published author at 17 years old
2019-09-25

#LetsTalkAboutHD with Ashley Pesi
2019-09-18

#LetsTalkAboutHD with Sarina Smith
2019-09-11

Here's the Deal with Parenting A Child With Juvenile Huntington's Disease
2019-09-11

#LetsTalkAboutHD with Miranda Spencer
2019-08-29

#LetsTalkAboutHD with Antonio Maltese
2019-08-28

#LetsTalkAboutHD with Jessica King
2019-08-26

#LetsTalkAboutHD with Jennifer Bandley
2019-08-23

#LetsTalkAboutHD with Morgan McLane
2019-08-07

#LetsTalkAboutHD with Courtney Thiel
2019-08-01

#LetsTalkAboutHD with Kendall Harrington
2019-07-30

#LetsTalkAboutHD with Morgan Gothard
2019-07-24

#LetsTalkAboutHD with Angela Penn
2019-07-23

Here's the Deal with Caregiving While Positive
2019-07-18

Cleveland 19 News interviews local college student at risk for HD
2019-07-17

#LetsTalkAboutHD with Brittany Passerell
2019-07-11

#LetsTalkAboutHD with Rebekah Granlund
2019-06-20

#LetsTalkAboutHD with Kristen Powers
2019-06-06

#LetsTalkAboutHD with Jessica Clift
2019-05-22

#LetsTalkAboutHD with Bobbie Jo Oehler
2019-05-15

#LetsTalkAboutHD with Jessica Robbins
2019-05-08

#LetsTalkAboutHD with Jessica Fitzpatrick
2019-05-07

#LetsTalkAboutHD with Morgan Vallimont
2019-05-06

WSAZ 3 News interviews NYA Member Hallie Kile
2019-05-02

#LetsTalkAboutHD with Darcy Hawkins
2019-04-30

#LetsTalkAboutHD with Megan Osowski
2019-04-24

#LetsTalkAboutHD with Gia Mannone
2019-04-23

#LetsTalkAboutHD with Hallie Kile
2019-04-18

#LetsTalkAboutHD with Katie Weikum
2019-04-17

#LetsTalkAboutHD with Mia McCrumb
2019-04-10

#LetsTalkAboutHD with Meagan Davis
2019-04-01

#LetsTalkAboutHD with Gabrielle McNary
2019-03-19

#LetsTalkAboutHD with Alyssa Cancelmo
2018-12-20

Here's The Deal with Survivor's Guilt
2018-08-14

Faces of NYA: Amanda Butterworth
2018-08-14

Faces of NYA: Melissa Ryant
2018-08-14

Faces of NYA: Havanna Lowes
2018-08-14

Faces of NYA: Anna Lunsford
2018-08-14

Faces of NYA: MaryAnn Emerick
2018-08-14

Here's The Deal with Relationships
2018-07-17

Here's The Deal with Post-Convention Blues
2014-10-06

FOX NY: Advocate fights for new Huntington’s disease legislation in mother’s memory

EVENTS

2022-03-15 @ 00:00 AM

HDSA Convention NYA Scholarship Deadline

New Orleans
2023-04-28 @ 09:00 AM

NYA Retreat

Boston, MA
2023-06-01 @ 12:00 PM

38th Annual HDSA Convention

New Orleans
2023-07-14 @ 09:00 AM

NYA Retreat

Louisville, KY
2023-09-29 @ 09:00 AM

NYA Retreat

Denver, CO
2023-11-10 @ 09:00 AM

NYA Retreat

California

Subscribe to the
HDSA e-newsletter today!

Join Us!

To apply for membership to HDSA’s National Youth Alliance, please complete this form.

First Name

Last Name

Birthdate

* Email Address

Home Phone

City

Postal Code

State/Region

Share a link

Send to: Your Name: Your Email: Your Message:

CONTACT US
505 Eighth Avenue / Suite 902
New York, NY 10018

Helpline: 800-345-HDSA (4372)
National Office: 212-242-1968
Email: HDSAinfo@HDSA.org

REGISTER TODAY!

2023 NYA RETREATS

Ask A Youth Social Worker

NYA RETREATS ARE BACK!!

NYA VIRTUAL MINI SERIES

Mentorship Program

Community Social Support

YOUTH SERVICES

CAREGIVER SERVICES & RESOURCES

HDSA TELEHEALTH

HDSA SUPPORT GROUPS

HDSA SOCIAL WORKERS

Locate Resources

Join the NYA

Learn more

NEWS

#LetsTalkAboutHD with Jack Cooper

#LetsTalkAboutHD with Amy-Jo Adams

#LetsTalkAboutHD with Mande Bellman

CBS17 live at the 2022 North Carolina Team Hope Walk

#LetsTalkAboutHD with Dani Stevens

#LetsTalkAboutHD with Caitlan Jane O’Heeron

#LetsTalkAboutHD with Chelsea Lee

#LetsTalkAboutHD with Kaylie Meacham

#LetsTalkAboutHD with Jenna Mannone

#LetsTalkAboutHD with Zoe Saridakis

#LetsTalkAboutHD with Sarah Marier

#LetsTalkAboutHD with Mark Adler

#LetsTalkAboutHD with Kristen Shaughnessy

#LetsTalkAboutHD with Kyra Clarke

#LetsTalkAboutHD with Brian Smith

CBS Pittsburgh Interview with HDSA's National Youth Alliance

#LetsTalkAboutHD with Dougan Smith

#LetsTalkAboutHD with Lauren Rogers

#LetsTalkAboutHD with Bailey Fairchild

#LetsTalkAboutHD with Nick Cassino

#LetsTalkAboutHD with "Sarah"

#LetsTalkAboutHD with Kellie Spinner

Jenna and Gia Mannone win HDSA Youth Award

ABC WDAY News: Grafton native becomes advocate after losing her father to HD

The Phil Parker Show interview NYA Member Megan Osowski

KX CBS News interviews NYA member Megan Osowski

#LetsTalkAboutHD with Janelle Roybal

Nassau Community College interviews Gia Mannone

R Is Rare Podcast with Ashley Pesi

#LetsTalkAboutHD with Dr. Kelsey Stuttgen Finn

#LetsTalkAboutHD with Tanja Ward

Action News Now: JHD Not Stopping Redding Teen From Living Life

WPR: Gene Modification Treatments Could Delay Onset Of HD

#LetsTalkAboutHD with Holly Matthews

#LetsTalkAboutHD with Kelly Strong

Fox 17 interviews NYA Member Shelby Lentz about Virtual Team Hope Walk

News 9 interviews NYA Member Jessica Fitzpatrick

#LetsTalkAboutHD with MaKenzie Cordell

Here's the Deal with Talking to Kids About Huntington's Disease

First Coast News shares Shelby Williams' HD Story

News4Jax interviews Shelby Williams

#LetsTalkAboutHD with Shelby Williams

Here's The Deal with End of Life & Huntington's Disease

#LetsTalkAboutHD with Collin Harrington

#LetsTalkAboutHD with Draque Ricco

#LetsTalkAboutHD with Madalynn Minica

#LetsTalkAboutHD with Kirsten Sandmire

Spectrum News One interview with NYA's Anna Lunsford

#LetsTalkAboutHD with Kiersten Wood

FOX 28: NYA Members share their HD Story

#LetsTalkAboutHD with Alorah Beers

#LetsTalkAboutHD with Rebecca Eastwood

#LetsTalkAboutHD with Raegan Heitzenrater

#LetsTalkAboutHD with Sarah Miller

#LetsTalkAboutHD with Destiny Hand

Fox 11 News: Student becomes self-published author at 17 years old

#LetsTalkAboutHD with Ashley Pesi

#LetsTalkAboutHD with Sarina Smith

Here's the Deal with Parenting A Child With Juvenile Huntington's Disease

#LetsTalkAboutHD with Miranda Spencer

#LetsTalkAboutHD with Antonio Maltese

#LetsTalkAboutHD with Jessica King

#LetsTalkAboutHD with Jennifer Bandley

#LetsTalkAboutHD with Morgan McLane

Community
Social Support

Locate
Resources