National Youth Alliance

2021 NYA VIRTUAL MINI SERIES

We're taking important topics and conversations and hosting hour-long sessions about them every other Saturday. Join us for as many discussions as you need, we look forward to seeing you!

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#LetsTalkAboutHD with Janelle Roybal

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DISABILITY RESOURCES

HDSA provides FREE disability resources for families impacted by Huntington's disease.

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NYA Event Kit

Order your event kit today!

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Join the NYA Today!

Joining the NYA is fast and simple. Being a member provides opportunities for support, awareness, education and advocacy.

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#LetsTalkAboutHD with Collin Harrington

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Ask A Youth Social Worker

Have a question for a youth social worker? Need help? Give us a little information about what's going on, and one of HDSA's Youth Social Workers will reach out to help!

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NEWS

2021-04-08

#LetsTalkAboutHD with Janelle Roybal
2021-04-08

Nassau Community College interviews Gia Mannone
2021-04-02

R Is Rare Podcast with Ashley Pesi
2021-03-11

#LetsTalkAboutHD with Dr. Kelsey Stuttgen Finn
2021-02-18

#LetsTalkAboutHD with Tanja Ward
2020-12-22

Action News Now: JHD Not Stopping Redding Teen From Living Life
2020-12-08

WPR: Gene Modification Treatments Could Delay Onset Of HD
2020-11-19

#LetsTalkAboutHD with Holly Matthews
2020-11-12

#LetsTalkAboutHD with Kelly Strong
2020-10-01

Fox 17 interviews NYA Member Shelby Lentz about Virtual Team Hope Walk
2020-09-27

News 9 interviews NYA Member Jessica Fitzpatrick
2020-08-27

#LetsTalkAboutHD with MaKenzie Cordell
2020-08-25

Here's the Deal with Talking to Kids About Huntington's Disease
2020-08-17

First Coast News shares Shelby Williams' HD Story
2020-08-13

News4Jax interviews Shelby Williams
2020-08-06

#LetsTalkAboutHD with Shelby Williams
2020-07-22

Here's The Deal with End of Life & Huntington's Disease
2020-05-22

#LetsTalkAboutHD with Collin Harrington
2020-05-14

#LetsTalkAboutHD with Draque Ricco
2020-04-02

#LetsTalkAboutHD with Madalynn Minica
2020-01-14

#LetsTalkAboutHD with Kirsten Sandmire
2019-12-28

Spectrum News One interview with NYA's Anna Lunsford
2019-12-17

#LetsTalkAboutHD with Kiersten Wood
2019-12-13

FOX 28: NYA Members share their HD Story
2019-12-13

#LetsTalkAboutHD with Alorah Beers
2019-12-06

#LetsTalkAboutHD with Rebecca Eastwood
2019-12-04

#LetsTalkAboutHD with Raegan Heitzenrater
2019-11-22

#LetsTalkAboutHD with Sarah Miller
2019-11-13

#LetsTalkAboutHD with Destiny Hand
2019-11-07

Fox 11 News: Student becomes self-published author at 17 years old
2019-09-25

#LetsTalkAboutHD with Ashley Pesi
2019-09-18

#LetsTalkAboutHD with Sarina Smith
2019-09-11

Here's the Deal with Parenting A Child With Juvenile Huntington's Disease
2019-09-11

#LetsTalkAboutHD with Miranda Spencer
2019-08-29

#LetsTalkAboutHD with Antonio Maltese
2019-08-28

#LetsTalkAboutHD with Jessica King
2019-08-26

#LetsTalkAboutHD with Jennifer Bandley
2019-08-23

#LetsTalkAboutHD with Morgan McLane
2019-08-07

#LetsTalkAboutHD with Courtney Thiel
2019-08-01

#LetsTalkAboutHD with Kendall Harrington
2019-07-30

#LetsTalkAboutHD with Morgan Gothard
2019-07-24

#LetsTalkAboutHD with Angela Penn
2019-07-23

Here's the Deal with Caregiving While Positive
2019-07-18

Cleveland 19 News interviews local college student at risk for HD
2019-07-17

#LetsTalkAboutHD with Brittany Passerell
2019-07-11

#LetsTalkAboutHD with Rebekah Granlund
2019-06-20

#LetsTalkAboutHD with Kristen Powers
2019-06-06

#LetsTalkAboutHD with Jessica Clift
2019-05-22

#LetsTalkAboutHD with Bobbie Jo Oehler
2019-05-15

#LetsTalkAboutHD with Jessica Robbins
2019-05-08

#LetsTalkAboutHD with Jessica Fitzpatrick
2019-05-07

#LetsTalkAboutHD with Morgan Vallimont
2019-05-06

WSAZ 3 News interviews NYA Member Hallie Kile
2019-05-02

#LetsTalkAboutHD with Darcy Hawkins
2019-04-30

#LetsTalkAboutHD with Megan Osowski
2019-04-24

#LetsTalkAboutHD with Gia Mannone
2019-04-23

#LetsTalkAboutHD with Hallie Kile
2019-04-18

#LetsTalkAboutHD with Katie Weikum
2019-04-17

#LetsTalkAboutHD with Mia McCrumb
2019-04-10

#LetsTalkAboutHD with Meagan Davis
2019-04-01

#LetsTalkAboutHD with Gabrielle McNary
2019-03-19

#LetsTalkAboutHD with Alyssa Cancelmo
2018-12-20

Here's The Deal with Survivor's Guilt
2018-08-14

Faces of NYA: Amanda Butterworth
2018-08-14

Faces of NYA: Melissa Ryant
2018-08-14

Faces of NYA: Havanna Lowes
2018-08-14

Faces of NYA: Anna Lunsford
2018-08-14

Faces of NYA: MaryAnn Emerick
2018-08-14

Here's The Deal with Relationships
2018-07-17

Here's The Deal with Post-Convention Blues
2013-12-17

#LetsTalkAboutHD with Danielle Seybold
2012-06-14

2012 HDSA Convention NYA Highlight Video

EVENTS

2021-05-01 @ 12:00 PM

NYA Virtual Mini Series: Research 101

VIRTUAL
2021-05-15 @ 12:00 PM

NYA Virtual Mini Series: Sharing Your Story

VIRTUAL
2021-05-29 @ 12:00 PM

NYA Virtual Mini Series: Juvenile Onset Huntington's disease

VIRTUAL
2021-06-26 @ 12:00 PM

NYA Virtual Mini Series: Post HDSA Convention Blues

VIRTUAL
2021-07-10 @ 12:00 PM

NYA Virtual Mini Series: Different Coping Methods Between Siblings

VIRTUAL
2021-07-24 @ 12:00 PM

NYA Virtual Mini Series: To Test or Not to Test?

VIRTUAL
2021-08-07 @ 12:00 PM

NYA Virtual Mini Series: Managing HD & Advocating through school

VIRTUAL
2021-08-21 @ 12:00 PM

NYA Virtual Mini Series: Grief of a loved one and testing

VIRTUAL
2021-09-04 @ 12:00 PM

NYA Virtual Mini Series: Testing Positive

VIRTUAL
2021-09-18 @ 12:00 PM

NYA Virtual Mini Series: Young Caregiver dealing with symptoms at Home

VIRTUAL
2021-10-02 @ 12:00 PM

NYA Virtual Mini Series: Anxiety and Depression

VIRTUAL

2021 NYA VIRTUAL MINI SERIES

#LetsTalkAboutHD with Janelle Roybal

DISABILITY RESOURCES

NYA Event Kit

Join the NYA Today!

#LetsTalkAboutHD with Collin Harrington

Ask A Youth Social Worker

Locate Resources

Join the NYA

Learn more

NEWS

#LetsTalkAboutHD with Janelle Roybal

Nassau Community College interviews Gia Mannone

R Is Rare Podcast with Ashley Pesi

#LetsTalkAboutHD with Dr. Kelsey Stuttgen Finn

#LetsTalkAboutHD with Tanja Ward

Action News Now: JHD Not Stopping Redding Teen From Living Life

WPR: Gene Modification Treatments Could Delay Onset Of HD

#LetsTalkAboutHD with Holly Matthews

#LetsTalkAboutHD with Kelly Strong

Fox 17 interviews NYA Member Shelby Lentz about Virtual Team Hope Walk

News 9 interviews NYA Member Jessica Fitzpatrick

#LetsTalkAboutHD with MaKenzie Cordell

Here's the Deal with Talking to Kids About Huntington's Disease

First Coast News shares Shelby Williams' HD Story

News4Jax interviews Shelby Williams

#LetsTalkAboutHD with Shelby Williams

Here's The Deal with End of Life & Huntington's Disease

#LetsTalkAboutHD with Collin Harrington

#LetsTalkAboutHD with Draque Ricco

#LetsTalkAboutHD with Madalynn Minica

#LetsTalkAboutHD with Kirsten Sandmire

Spectrum News One interview with NYA's Anna Lunsford

#LetsTalkAboutHD with Kiersten Wood

FOX 28: NYA Members share their HD Story

#LetsTalkAboutHD with Alorah Beers

#LetsTalkAboutHD with Rebecca Eastwood

#LetsTalkAboutHD with Raegan Heitzenrater

#LetsTalkAboutHD with Sarah Miller

#LetsTalkAboutHD with Destiny Hand

Fox 11 News: Student becomes self-published author at 17 years old

#LetsTalkAboutHD with Ashley Pesi

#LetsTalkAboutHD with Sarina Smith

Here's the Deal with Parenting A Child With Juvenile Huntington's Disease

#LetsTalkAboutHD with Miranda Spencer

#LetsTalkAboutHD with Antonio Maltese

#LetsTalkAboutHD with Jessica King

#LetsTalkAboutHD with Jennifer Bandley

#LetsTalkAboutHD with Morgan McLane

#LetsTalkAboutHD with Courtney Thiel

#LetsTalkAboutHD with Kendall Harrington

#LetsTalkAboutHD with Morgan Gothard

#LetsTalkAboutHD with Angela Penn

Here's the Deal with Caregiving While Positive

Cleveland 19 News interviews local college student at risk for HD

#LetsTalkAboutHD with Brittany Passerell

#LetsTalkAboutHD with Rebekah Granlund

#LetsTalkAboutHD with Kristen Powers

#LetsTalkAboutHD with Jessica Clift

#LetsTalkAboutHD with Bobbie Jo Oehler

#LetsTalkAboutHD with Jessica Robbins

#LetsTalkAboutHD with Jessica Fitzpatrick

#LetsTalkAboutHD with Morgan Vallimont

WSAZ 3 News interviews NYA Member Hallie Kile

#LetsTalkAboutHD with Darcy Hawkins

#LetsTalkAboutHD with Megan Osowski

#LetsTalkAboutHD with Gia Mannone

#LetsTalkAboutHD with Hallie Kile

#LetsTalkAboutHD with Katie Weikum

#LetsTalkAboutHD with Mia McCrumb

#LetsTalkAboutHD with Meagan Davis

#LetsTalkAboutHD with Gabrielle McNary

#LetsTalkAboutHD with Alyssa Cancelmo

Here's The Deal with Survivor's Guilt

Faces of NYA: Amanda Butterworth

Faces of NYA: Melissa Ryant

Faces of NYA: Havanna Lowes

Faces of NYA: Anna Lunsford

Faces of NYA: MaryAnn Emerick

Here's The Deal with Relationships

Locate
Resources