Connect with us:
  • HD SYMPTOMS AND TREATMENT IMPACT SURVEY

    This first-of-its survey has been created by the HD community for the HD community. When you take this survey, you will be informing the FDA, NIH and medical product developers how you describe the challenges of living with HD, manage symptoms, and define the value of new treatments. 

  • TAKE ACTION NOW!

    You can participate in the HDSA Externally-led Patient Focused Drug Development (EL-PFDD) Meeting for Pre-symptomatic and Early to Mid-Stage Adult Onset of HD, on November 13, 2024. 

  • JOIN POWER HD

    By generating the most comprehensive patient-driven Huntington's disease data we can accelerate research and the development of new drugs, devices, or other therapies. YOU HAVE THE POWER. 

  • SAVE THE DATE!

    Join us for the 40th Annual HDSA Convention in Indianapolis, Indiana on June 26-28, 2025
    This is your unique chance to connect, learn, inspire and get inspired. Our convention is not just an event - it's a celebration, it's magic!

  • 2024 NYA RETREATS

    We had a blast out in Nashville,TN!  Thank you to everyone who joined us! 
    Click the button below to check out info about our next retreat!
     

  • THE NYA RETREAT APPLICATION IS NOW OPEN FOR PHOENIX, AZ!


    Click the button below for more information and to apply!

  • NEW Support Groups

    We have added 4 new support groups specific to young adults.  Click the link below to find out more information and sign up!

     

  • Ask A Youth Social Worker

    Have a question for a youth social worker? Need help? Give us a little information about what's going on, and one of HDSA's Youth Social Workers will reach out to help!

  • Mentorship Program

    HDSA's National Youth Alliance has partnered with the Huntington Society of Canada and HDYO to launch a mentorship program for youth & young adults impacted by HD